Now that Melody has had her surgeries, we are going to classes to learn for her care.
They taught us the vent settings, how to change some settings, how to change the circuits, and how to care for her trach.
Everyday we will have to remove the trach ties, clean her neck, clean around her stoma, put new trach ties and a new guard. And once a week we will have to remove the cannula and replace it. This was a little harder, but eventually, this too became our new normal.
As for the G-tube, we only have to clean around it daily and turn it. The g-button is easy. And we are supposed to change it every 6 months. Not bad at all.
We started the classes at Children's hospital, and then we got transferred to a step down unit down the road for 3 weeks, to finish learning for her care.
I have hated every minute of her being at that rehab hospital. She did not get as much care, they were not coming when her alarms would go off. It was a nightmare for me and I could not wait to go home.
We completed each class we had to do as soon as possible and we got to go home on February 8th 2018.
Getting out of the ambulance.
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